Posted on 18 October 22 by Mat Peisert
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Position Profile: Executive Director Yaya Foundation
kpCompanies is leading the search for the next Executive Director for the Yaya Foundation. This will be a highly visible and inspiring leader who possesses the vision to grow and to move the organization forward while building on the foundations success. The Executive Director will guide all aspects of the organization, supported by a talented staff and a committed Board. Key areas include: strategy development and execution, fundraising, project management, building relationships, organizing community events, team development and fiscal management.
THE ORGANIZATION: Yaya Foundation
The Yaya Foundation is driven by the dream that one day, every person with 4H Leukodystrophy will have the chance to live a long, healthy life.
The Yaya Foundation fights for these people and their families by acting as a catalyst and a connectorbringing researchers together to accelerate the pace of discovery, while connecting families with vital educational resources, expert care, and emotional support.
The Foundation will not stop until they find a treatment and, ultimately, a cure.
The Yaya Foundation is the only advocacy group in the world fighting for people affected by this rare, inherited, neurodegenerative disease. In just three short years, the Foundation has executed many tasks such as:
The Foundations Executive Director must be largely self-directed and able to work productively with the Board President, Research Director, Advancement Advisor, and Board of Directors, as appropriate, to execute the Foundations operating, development, family support and research plans.
We are looking for a
Strategic Leader. Visionary and collaborative leader with demonstrated knowledge of innovative program design as well as a deep understanding of how to get things done through the rare disease community by building and maintaining meaningful relationships.
Fundraising Leader. Creates effective strategies rooted in the vision of the Yaya Foundation while taking into account social and cultural factors that influence fundraising. This leader leverages and multiplies financial support by inspiring the community to become a part of and support its critical mission.
People Leader. Guides, inspires, trains, develops, and communicates with staff to foster effectiveness, belonging and growth.
Community Leader. Upholds and advances the Yaya Foundations credibility, brand, and role in the community, working closely with partners as well as private, professional, and civic groups and caring deeply for patients and families.
Fiscal Leader. Sound fiscal manager and a great fundraiser who understands non-profit accounting, using financial analysis to help make appropriate business decisions. Develops and manages resources sufficient to ensure the ongoing health of the organization.
Life Sciences Leader. Demonstrated commitment to improving patient outcomes with an ability to earn trust and credibility from patients, families, clinicians, researchers, and funders, and to be able to navigate the complex rare disease landscape.
JOB DUTIES AND RESPONSIBILITIES:
The Executive Director provides leadership to develop cohesive organizational, administrative and financial plans, policies and procedures with the staff and Board of Directors. This leader has the ability to lead change in a complex environment. The Executive Director oversees design, delivery and quality of new and existing programs and continually monitors for effectiveness and relevance.
Other accountabilities include:
Below are some of the typical requirements for an Executive Director. We recognize that skill sets can be a complex combination of experiences. Even if your background does not exactly match these requirements but you have a passion for our work, we would love to hear from you and we recognize the value of transferable skills.
HOW TO APPLY
Interested candidates should submit cover letter, resume, and salary expectations. You can apply in the following ways:
1. Apply via email to Mat Peisert at firstname.lastname@example.org.
Equity & Salary Disclosure
We believe in practices that create real equity and pay parity regardless of background or identity and we freely discuss compensation with all qualified candidates the first time we interview them. Saving the salary discussion for the first conversation allows us to fully understand the needs of each candidate and to ensure that qualified candidates, even those whove historically been overlooked and/or underpaid, dont self-select out of the processes based on salary alone, as our experience and research suggests. In addition to those who opt out because they fear the salary may be out of reach for them, we equally dont want to miss out on conversations with candidates who are slightly over the range when in some cases the total compensation including factors such as bonuses, flexibility, and better health benefits, etc may exceed expectations. Finally, as a search firm we are always looking for top-notch talent to introduce to our clients. Should the salary or any other requirement not be a fit, there is often a chance that someone on our team is working on another position you may be a better fit for. If you would like to discuss your qualifications for this role as well as discuss salary and compensation - just give us a call, wed be happy to discuss!
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